Warning: This post contains strong language.

When I started this blog I wanted to be positive. That’s why I called it Acceptable Face – because I was presenting the acceptable face of Aspergers – I would be showing how Aspies can live well and overcome difficulties. Today I am filled with doubt again. There is a hurdle and I really don’t know if I can get over it.

My toddler is not yet two. So far I think I’ve been doing a good job, but this last week has given me doubts. This last week has made me think, either it’s her illness making things awkward (she has a bad cold), or a natural phase, or it’s something I’m doing / not doing that’s wrong. She can’t tell me. So what if it’s me? What if I keep doing it? What if I’m changing the course of her whole life for the worse, right now, without having a clue?

How can I be a good enough parent when I can’t figure out what’s going on?

When I was a kid, I didn’t want a baby because I knew I wouldn’t cope well with spending that much time around a needy human being. Then I got older and thought maybe it’ll be OK. My hormones seemed very keen for me to have a baby. Now I have two issues. The problem I foresaw as a kid, and this new problem of ‘O shit, maybe I’m screwing up her life with my Aspie-ness’.

Because let’s face it, if I don’t know what’s wrong, it’s probably because I struggle to understand things from her perspective. Or it’s because she’s worked out that sometimes I get very irritated by her behaviour, because I want my own space. Either way, it’s the Aspergers getting in the way.

All I want is to be a good parent who doesn’t fuck up her child’s life. She’s not even two.


Has anyone else with Aspergers dealt with this?

In Facebook groups and forums I’ve seen people with Asperger’s or other degrees of autism complain about the lack of support groups for adults. I’m not surprised there are a lack of resources for us, we’re a minority, and in some towns and villages you’re lucky to get a coffee shop so why expect an adult autism support group?

What does surprise me is that they consider it a problem because they can’t meet other Aspies face-to-face. At least online you don’t have to worry about making eye contact and whether it’s OK to ask someone out for a coffee. And since many of these people appear to be tech-savvy, why not use Skype, or Google hangouts to create a face-to-face group, if that’s what you want.

I prefer to blog – I feel as if I’m talking to people, but really it’s very one-sided. I don’t have to think about how my words will be received or if I’ll offend anyone. I don’t have to worry about interesting a specific person. I just write what’s on my mind and sometimes I get comments, likes, or follows from it.

I’m also a fan of this Youtube vlog. This guy does the same thing but as a series of videos. I find him interesting and entertaining and he covers topics that interest me and make me feel connected. Sometimes he’ll say stuff that makes me think ‘Aha! So it’s not just me’. In this way, his vlog is a real support service, and all I need is an internet connection. I don’t have to drive somewhere and introduce myself to a room full of strangers to do this.

For more on internet connections, read this.

I recently wrote a post about how good people with Asperger’s can be at shutting down emotions. It’s a skill I’ve come to value and appreciate, but there are times when my natural aversion to strong emotional displays and experiences is actually a big problem.

Being able to block emotions is usually helpful for dealing with our own lives, but when our friends or relatives get upset it’s a whole other kettle of fish. Time and again I’ve seen that someone I care about is suffering and I’ve wanted to help. But the help I’m capable of giving is far below the standard that can be offered by someone without Asperger’s.

Our instinct is to walk away

Over the years, I’ve been able to improve. I’m not quite as useless as I used to be when somebody starts crying or looks upset. But I’m still missing something – a natural warmth, I think – when it comes to helping people in distress and giving comfort. My instinct is always to walk away and get somebody else.

At school, this meant fetching a teacher. Now, I rely on a few socially adept friends to help out where I can’t, and to help support me as I try to do my bit. Thank goodness there are people out there with different social skills.

I don’t know if non-Aspies need Aspies the way we need them. I don’t care as long as we can figure out how to work together.

Someone with Asperger’s recently posed the question “How do we grieve?”. My initial response was ‘it just happens’, someone dies and we respond – if we’re sad then that’s grief. Then I thought I might have misunderstood. Maybe they don’t mean ‘how’ as in ‘how can I feel grief’ but ‘how’ as in ‘how does grief manifest itself (or is expressed) for those with AS’.

Firstly, don’t expect to grieve. I went to my first funeral as a child, excited because I was curious about what would happen, very much NOT grieving. It was a relative, someone I’d met a few times and I was one of few people in the church not crying or looking downcast. I felt I’d hardly known this woman and she hadn’t been very nice to me so what need for grief?

The second relation who died was much closer but still, it didn’t really affect me until much later. Now I might occasionally lament that he died when other, less likeable relatives, live on. It’s not really grief – I don’t think there was much of that – although I did cry a bit at the funeral.


Does this make me sound cold-hearted? Not so. I know for a fact I would be horribly upset if anyone I loved died. As a depressed teenager I would often worry about people close to me dying and just thinking about it would make me cry a lot. That is grief. Heartache and lots of crying.

As an adult I find myself reaching for stock responses to the news of people dying. If it’s someone I know then I really do feel bad for their husband or wife or children. If it’s someone I don’t know like a cultural icon, or a relative of a friend of a relative, then I might say “O dear” and try to look sympathetic. The same applies to people’s pets. I don’t really care because these people or animals have no connection to my life.

And there we have it, the three levels of Aspie ‘grief’. Nothing. Attempted sympathy (to be socially acceptable and not hurt anyone’s feelings). And full on.

I’m not looking forward to experiencing the third stage for real. The question of how to carry on is waiting on the other side.


I feel I should add something about grief that I’ve noticed in other people. Sometimes it goes too far and people lose their sense of proportion. It’s as if nothing else exists apart from this feeling and everything else has to bend around it. This is a good way to lose friends and miss out on life’s opportunities.

It may sound cold, especially from someone who’s never experienced real full on grief before, but there has to be a cut off point. I don’t mean you should stop missing that person. Just don’t let it ruin everything else in your life and don’t get cross when people try to help you move on.


When I was growing up, before I’d even heard of the condition, I spent a lot of time crying because I couldn’t relate to my peers. As you can imagine, this made dating rather tricky.

By the time I was of an age to date boys I was too afraid to talk to most of them. My less than amazing social skills had taught me to expect rejection, ridicule and stressful misunderstandings. Somehow I got from there to being happily married.

How I started dating

My first boyfriend was the friend of a friend. Our first meetings (and many of our dates) were the result of lots of alcohol. I can’t recommend alcohol as a solution to your social and dating nerves but it certainly helped me set the ball rolling.

What I found best for starting new romantic relationships was internet dating sites. My aspergers makes it easier to communicate in writing than in person, plus I hate the telephone! Emailing prospective partners was a great way to get to know them as I was able to assess their interests and education level by reading their emails.

First dates were still nerve racking but I didn’t have to endure the nightclub chat up routines!

Be warned: some sites are aimed at people seeking long term relationships and others seem to cater for more casual flings so if you’re thinking about dating this way make sure you pick the right type of site!

Learning from your mistakes

It’s hard to talk about feelings with someone you care about. The more I value someone’s opinion the more likely I am to want to clam up about things that really should be shared.

Something I learnt from my husband is that you cannot rely on your partner to understand your feelings unless you explain them. This is probably true for everyone but especially for relationships where one or more partners is an aspie.

One person’s logic is another person’s madness. Don’t take it for granted that your understanding of something is correct, or that it is the only valid interpretation.

This was a hard lesson to learn because there’s a lot of ‘normal’ behaviour I don’t get. However, since I started applying this rule the things I don’t understand haven’t been so stressful. Like a kid at school I just have to raise my hand and say “I don’t understand, what do you mean by…”

Some people might think I’m an idiot but luckily my husband isn’t one of them. If someone does think you’re an idiot that’s their problem.